Exploring the Experiences of Individuals Impacted by Eating Disorder Symptoms with a Virtual Support Program: A Canadian Qualitative Study

Maria Nicula

Impact

  • Participants appreciated the benefits of the Recovery Support Program (RSP), such as being free, self-paced, and providing trustworthy information.

  • The program addresses a key gap in the care of eating disorders (ED), especially for undiagnosed individuals, rural residents, and those without access to formal services.

  • Findings are used to advocate for policy and funding changes at the healthcare level to support low-barrier, stepped-care approaches for Canadians with ED symptoms.

  • Sharing research findings promptly and professionally with stakeholders is critical for advancing the field and benefiting those who could benefit from these initiatives. This can lead to the creation of comparable programs and increased funding.

  • Ontario

  • Studentship

  • McMaster University

  • Body Brave

  • Mitacs, Knowledge Institute on Child and Youth Mental Health and Addictions

  • 2023-2024

  • Eating Disorder

  • People with Disabilities

About the Project

The project aimed to explore the experiences and perspectives of adult Canadians using Body Brave’s Recovery Support Program (RSP) and to understand the perceived role of such low-barrier, stepped care, virtual ED support services in the broader continuum of care for individuals impacted by eating disorders . This study employed a Qualitative Description research design, focusing on accurately capturing and reflecting participant experiences and perspectives, making it particularly suited for exploring the nuanced, personal experiences of individuals with EDs engaging with the Recovery Support Program (RSP).

Methodology

The project utilized a Qualitative Description research design to closely capture the experiences and perspectives of adult Canadians (ages 18+) using Body Brave's RSP for eating disorders. A total of 20-25 participants were recruited through email newsletters, meeting eligibility criteria and completing a screening process. The collected data included demographic information and qualitative interviews conducted via Zoom and was then analyzed. The findings informed Body Brave about user perspectives on the RSP, which contributed to program improvement.

Findings

The RSP was found to be accessible to a diverse range of individuals, addressing the needs of those who may not seek or have access to formal ED treatment.

  • 92% of participants were female and had been experiencing ED symptoms for an average of 17.12 years. Many sought help for the first time through the RSP.

  • 44% of RSP participants sought help for ED for the first time, demonstrating the program's success in reaching new users.

  • 88% wanted better feedback and tracking, while 68% found support session videos helpful but desired live sessions.

  • 28% of participants did not engage in peer support due to concerns about anonymity and relatability and 48% used written resources for communication and harm reduction strategies.

Project Outreach

The project has not yet extended beyond Ontario.

Resources Created