Impact of an innovative, adaptive residential product on the quality of life of adults with autism

Estellane St.-Jean

Impact

  • The findings were utilized to help VLF’s improve their services to further promote independence and gain knowledge about quality of life and well-being among autistic individuals during their transition to a new living situation (e.g.: residential care, group home, ect.). These helped VLF residents by:

    • Maintaining low stress and anxiety levels;

    • Improving well-being and social interactions with other residents and community members; and

    • Bettering life skills such as independence and emotional regulation.

  • Quebec

  • Studentship

  • University of Montréal

  • Fondation Véro et Louis

  • Mitacs

  • 2021-2022

  • Therapy and Rehabilitation

  • People with disabilities

About the Project

Autism Spectrum Disorder (ASD) affects 1% to 2.5% of people and can impact social interactions, sensory processing, and behavior. In Québec, many autistic adults struggle to access proper support, especially in housing. This research project aimed to evaluate the impact of transitioning to an innovative residential environment on the well-being, stress and anxiety levels, and functional autonomy of autistic adults living at the Véro & Louis Foundation (VLF) care home.

Methodology

Interviews with the resident’s parents were conducted via Zoom to assess VLF residents’ quality of life, integration and emotional well-being. Additionally, questionnaires were also distributed through emails to residents’ parents to collect data on topics such as:

  • Quality of life (Overall well-being and life satisfaction);

  • Emotional & behavioral well-being  (mental health and social adaptation); and

  • Adaptive behaviors (Practical skills people learn to function in their daily lives).

Lastly, clinical records of VLF residents were accessed to collect information on their well-being and other sociodemographic information.

Findings

  • According to parents, most residents maintained good levels of quality of life, emotional well-being and adaptive behaviors during the transition.

  • Parents also reported that upstream preparation, communication, and individual characteristics were important when transitioning to a new living environment.

Project Outreach

This project benefited autistic adults living at the Véro & Louis Foundation, with findings being exlusively disseminated to and used by the upper management of the Foundation.

Resources Created

  • Master’s dissertation;

  • Scientific article;

  • Presentations at local and international conferences;

  • Guidelines for adapted housing;

  • Reports on best practices; and

  • Educational materials for families and caregivers.